Our goal 2013, His first therapy for 2013

This is Carl first physiotherapy on 2 January 2013, it take about 2 hours therapy, he was crying while doing PT but with his babytv he relaxed a little and began to focus. Our hope with this exercise may strengthen his muscles. We will continue this therapy as it helps Carl and try to find another alternative treatment.

Our goal for this year (2013)

1. Strengthen muscles
2. Crawling 
3. Independent siting
4. First step

He was screaming 

His babytv never left behind 

How cute he is, Love this man

at the end going back home , he fall asleep because too tired but he did a great job! well done Carl Kenzie, Never Give Up! Go Carl

8 Month

Go Back to Hometown

Daddy Cuddle

After we were discharged from the hospital we returned, the village (Sabah). I feel very comfortable in my parents house. Stress and anxiety have recovered slightly although still afraid to face the days to come. I have explained my child's situation to my parents and their reaction is always positive and told me "Do not worry he's just taking the time and he will do it"

When we were still in Johor, stress and anxiety came like rapid-fire. Since I became active in the study of Hypoxic ischemic encephalopathy and to know in detail about it, makes me nervous and sometimes I sobbed like a baby. Feelings of intense fear, feeling lost direction, feelings of wonder "what should I do to help him?" "Oh I have to do this, do that!" "Why like this?" "Who will help me?". Too much on my mind.

In the village, My mother and father made ​​me comfortable and less worried. For now, Carl can roll to the left only, but since he started taking Epilim, I found he was less rolling. the positive is that he tries to bottle feeding.

Tomme Tippy Bottle

Things that make us happy:

Eating Durian

Eating boiled cassava

The bath that can be supported when he lay down to being bathed

About an appointment at the Hospital Women and Children in Sabah, Likas. Not good at all, I was told that the delay development, such as control of the head and body caused brain damage. I actually know already what the doctor will explain as I have already made ​​a study about it and I ask your doctor to give my child the therapy, but he shook his head and still explain me the same thing. Stupid doctor!. I was asked to wait outside the room waiting for a letter of reference for the Hospital Sultan Ismail as we will change the hospital.

I only got two letters of reference and it is so simple.  : (

Carl Kenzie History

Carl was born and diagnosed with:

*Severe Mas (Click Here to find out about Severe Mas) https://www.childrensmemorial.org/depts/neonatology/meconium-aspiration-syndrome.aspx

• Delivered Full term via EMGLSCS due to fetal distress
• Head delivery by forceps noted moderate meconium stain liquor
• ventilated for 20/7 and required HFOV
• developed PPHN and given iNO for 6/7 with syr.sildenafil for 9/7
• Hypotensive and required triple inotropes

**Perinatal asphyxia with HIE grade 3 (Click here to find out about Hypoxic ischemic encephalopathy) https://www.childrensmemorial.org/depts/neonatology/hypoxic-ischemic-encephalopathy.aspx

• as at birth 4 at 1 min, 6 at 5min
• Cord pH:6.88 HO3 21.1 BE -15.5

***Resolved pneumonia (Click here to find out about pneumonia) http://en.wikipedia.org/wiki/Pneumonia

****Hypertension(Click here to find out about Hypertension) http://en.wikipedia.org/wiki/Hypertension

NICU